In the meantime, I was talking to a friend this morning about how I prepared myself for the transplant and how I got through it so well. I believe that the steps I took in advance to prepare myself helped me to get through it and I feel that this is something that I should start sharing with others who are about to start going through the transplant process. I took what I experienced from my first transplant back in 2014 and worked with my Haematologist and a Psychologist to formulate a plan which worked quite well. In summary, it boiled down to two things:-
- How to prepare myself mentally for the transplant. This included the run up to the transplant as well as the time during the hospital stay. How to address the feelings of dread when I thought about the transplant; what to do when I am feeling without energy, bored, and maybe even depressed during the transplant; how to manage the transition between hospital and home. A few months before the transplant, I was very worried and started to dread the thought of it. Working with a Psychologist really helped and it got me through the whole experience with a positive frame of mind. I would be interested to hear the thoughts of the nurses and doctors who treated me during my stay on what they thought of my attitude and how I coped compared to others - I may ask next time I'm in the hospital.
- How to prepare myself physically. I have always believed that exercise promotes good health and I made sure that I went into hospital as physically fit as I could. For me, having just been through 6 months of chemo, this was running 5k every other day with 5k walks on the alternate days. In the run-up to the transplant, they perform checks on you to determine your fitness for the procedure - this includes heart and lung tests - so I figured that having strong heart and lungs would be important. While in hospital, I walked 1k around the ward every evening - this kept me alert and strong and the hospital clearly believed this is a good thing as they have posters everywhere reminding all patients to have a daily walk. I haven't seen any studies between physical fitness and side effects of transplants (or chemo for that matter), but I cant ignore the fact that I got through two transplants without any sore mouth or bad infections and I wonder how much this is related to being physically fit.
Maybe I'll write a book!
Get writing, Trevor! Your experience & advice would be so helpful to others.
ReplyDeleteYou should write about this. You're a natural and you bring a lot of humor to an otherwise downbeat subject. I know you've inspired me and I wasn't sick - I figured if you could run with what was going on with you, I had absolutely no excuses. Enjoyed my 7.5 mile run on Sunday. Who'd have thunk!
ReplyDeleteGlad to hear I've inspired you Jos, and even more delighted to see you're running so much. How did it start? Kyla with a rolling pin?
DeleteBook.... and you already have a good title for it.
ReplyDeleteLynchoma The Movie... go big on your message mate :)
ReplyDeleteGreat news , hope the visitors aren't too demanding
ReplyDeleteThey weren't (this time!). Who are you "yellow turtle"? Gimme a clue....
DeleteGreat idea Trev, I think it'll be incredibly helpful for those about to start their journey.
ReplyDelete